Winter can be a particularly challenging time for many of the families we support, especially those caring for autistic adults or people with complex needs. One of our parents, Paul, kindly offered to share his experience to help others feel less alone – and to shine a light on the hidden pressures many carers face at this time of year.

Paul cares for his 37-year-old autistic son, Keith, who is nonverbal and also lives with Epilepsy and IBS. Keith thrives on routine and consistency, and even the smallest change can have a big impact on his wellbeing. Like many families, winter brings a number of additional pressures.

Fireworks, Halloween visitors, the build-up to Christmas and changes to the daily routine can all be overwhelming for Keith, sometimes triggering meltdowns or even seizures. The family manages these moments with incredible patience and care, often breaking changes into small steps and preparing weeks in advance. Even with planning, Christmas Day itself can be difficult, especially when it falls on a weekday that Keith associates with day services.

Paul also spoke about the practical pressures that winter brings; keeping the home warm, ensuring Keith feels safe, and balancing rising fuel costs with the need to leave doors open for him to regulate his sensory experience.

Through all of this, there is no “day off.” Caring is a 24/7 commitment, even when feeling unwell or exhausted. Paul’s honesty reminds us how much strength, resilience and love is at the heart of unpaid caring – and how vital it is that carers feel supported, valued and connected.

At Talkback, we want to thank Paul for sharing his story. His reflection helps us understand what winter really looks like for many of the families we work with. It also helps us think about how we can continue to improve our support, from flexible community sessions to wellbeing check-ins during the most challenging months.

Additional Guidance and Support for Winter Challenges

While every family’s situation is unique, there are some widely available resources and tips that many carers find helpful during the winter season:

Help With Energy Costs

Many carers don’t realise they may be eligible for additional support. Options you can explore include:

• Warm Home Discount – a one-off discount on electricity bills for people who qualify.
• Cold Weather Payments – automatic payments during very cold periods for those on certain benefits.
• Priority Services Register – free to join and offers extra support from your energy supplier.
• Carers UK and Citizens Advice both offer clear, up-to-date guides on benefits and grants available to carers.

Support Around Fireworks and Loud Noises

Fireworks can be distressing for people who are autistic or sensory sensitive. Families often find it helpful to:

• Use noise-cancelling headphones or ear defenders.
• Create a quiet, safe space at home where the person feels in control.
• Use visual schedules or social stories to explain what fireworks are and when they may happen.
• Apps such as “Every Mind Matters” offer grounding and calming strategies that some people find useful.

Managing Changes to Routine Over Christmas

Holiday periods can be especially difficult when routines change. These small steps may help:

• Introduce changes gradually, as Paul’s family do.
• Use calendars, visual timetables or countdowns to prepare for upcoming events.
• Keep key parts of the daily routine the same where possible.
• Plan quiet recovery time after busy or demanding days.

If You Need Support

If you are experiencing similar pressures, please remember you’re not alone. Our Talkback team is always here to talk, help problem-solve, or simply offer space to share. Sometimes just having someone listen makes all the difference.